Saturday, March 3, 2012

CMN Radiothon

 E with Kelli and Mudflap
 E and Grace, another miracle child

Big brother, Landon got to go too

While we were in the hospital, getting E's diagnosis, the staff asked us to be a miracle family. Of course we said, yes. They have 6 miracle children this year. Every child was a patient at UMC for a different reason. They have a radiothon, with the local station, KLLL and a telethon on KCBD to raise money for the hospital. The Radiothon was last weekend. Brien and I went in a few weeks earlier to record our stories. They did a monolog of us with music in the background. And we did a live interview on the morning show. E had a great time. She loved meeting all the DJ's and radio staff. They treated her like a princess. Everyone tried to get her to say something on air, but she refused.We asked all of our family and friends to donate in her honor. All the stories played periodically over the weekend. They all brought me to tears. It's so heartbreaking to hear these parents talk about the struggles and battles their kid goes through everyday. It was fun to be a part of something so wonderful. It felt good to be able to help the hospital raise so much money. Over $161,000 was raised. That's awesome.


E checked her blood glucouse (with very little assistance from me) for the first time 3 nights ago. I am proud and sad at the same time. I don't know which is worse, me pricking her finger or watching her do it to herself. No child should have to do this. It's just not fair. Is this something I should write in her baby book, like 1st step, 1st word, 1st tooth? I haven't even been able to write in her baby book anything about diabetes, yet. Something about writing it in there is so hard for me. I can blog about it, and talk about it all day, but writing it in her baby book is completely different. I guess, because everything else in the book is happy, sweet and cute.

She went to her first bday party last night, since the diagnoses, and had so much fun. She swam, and ate some cookie cake. But for some reason I was sad. I was worried the whole time that her numbers were going to be very low because of all the swimming, (but both times I checked her she was 108, then 109 yay!).  No parent should have to worry about that while they are watching their kid play and have fun. It just breaks my heart that she has to deal with this everyday. I HATE diabetes. I truely do. I HATE that so many kids have this disease hanging over their head, keeping them from being like their friends in everyway. I HATE that people are so dumb about diabetes and ask the dumbest questions and say the dumbest things. I HATE that people try to give me advice on how to cure her. I HATE that she has to be pricked and stuck to be kept alive. I HATE that when she feels bad or is moody we feel like we need to check her numbers.  I HATE it all.